NHS Digital has been collecting anonymised data from GP practices for research purposes for years. On 1 July a new, daily, data collection process will begin. You can find out more about this on the NHS Digital website. You may not want your identifiable patient data to be shared for purposes except for your own care. If this is the case, you can opt out by registering a Type 1 Opt-out.
If you do not want your data to be shared with NHS Digital please register your Type 1 Opt-out with the surgery by 23 June 2021.
The data held in your GP medical records is shared with other healthcare professionals for the purposes of your individual care. It is also shared with other organisations to support health and care planning and research.
You can register a Type 1 Opt-out, for yourself or for a dependent (if you are the parent or legal guardian of the patient), by downloading the form from the link below. Forms should be returned to the surgery before the deadline of June 23rd 2021.
Type One Opt Out Form June 2021
More information about this matter can be viewed on the NHS Digital website here
Information about your health and care helps us to improve your individual care, speed up diagnosis, plan your local services and research new treatments.
In May 2018, the strict rules about how this data can and cannot be used were strengthened. The NHS is committed to keeping patient information safe and always being clear about how it is used.
You can choose whether your confidential patient information is used for research and planning.
How your data is used
Your health and care information is used to improve your individual care. It is also used to help us research new treatments, decide where to put GP clinics and plan for the number of Doctors and Nurses in your local hospital. Wherever possible we try to use data that does not identify you, but sometimes it is necessary to use your confidential patient information.
What is confidential patient information?
Confidential patient information identifies you and says something about your health, care or treatment. You would expect this information to be kept private. Information that only identifies you, like your name and address, is not considered confidential patient information and may still be used: for example, to contact you if your GP Practice is merging with another.
Who can use your confidential patient information for research and planning?
It is used by the NHS, local authorities, university and hospital researchers, medical colleges and pharmaceutical companies researching new treatments.
Making your data opt-out choice
You can choose to opt out of sharing your confidential patient information for research and planning. There may still be times when your confidential patient information is used: for example, during an epidemic where there might be a risk to you or to other people's health. You can also still consent to take part in a specific research project.
Will choosing this opt-out affect your care and treatment?
No, your confidential patient information will still be used for your individual care. Choosing to opt out will not affect your care and treatment. You will still be invited for screening services, such as screenings for bowel cancer.
What should you do next?
You do not need to do anything if you are happy about how your confidential patient information is used.
If you do not want your confidential information to be used for research and planning, you can choose to opt out securely online or through a telephone service.
You can change your choice at any time.
To find out more or to make your choice visit www.nhs.uk/your-nhs-data-matters or call 0300 303 5678.
